在服用抗凝药时以患者为中心管理大量月经出血:一项调查研究
Benjamin Barnett1, Rushad Patell1, Dana Angelini2
1Beth Israel Deaconess Medical Center, Boston, MA, USA.
概括
严重的月经出血 (HMB) 是常见的,并且在接受静脉血栓塞栓症 (VTE) 抗凝药的妇女中未得到治疗. 患者经常误解治疗风险,优先考虑血栓瘤预防而不是HMB管理.
科学领域:
- 血液学 血液学 血液学
- 妇科 妇科医生 妇科
- 患者报告的结果
背景情况:
- 严重的月经出血 (HMB) 影响了近75%的接受静脉血栓塞栓症 (VTE) 抗凝药的女性.
- HMB对生活质量,工作和上学产生负面影响.
- 目前对患者在抗凝时对HMB治疗的决策的理解是有限的.
研究的目的:
- 调查患者在服用抗凝药时对HMB治疗的经验,感知和偏好.
- 确定影响HMB在VTE患者治疗选择的因素.
主要方法:
- 一个基于网络的调查是由临床医生和患者倡导者开发的.
- 通过患者倡导团体和社交媒体分发的调查 (2024年5月至6月).
- 针对性成年人 (18+) 具有VTE病史和自我报告的HMB.
主要成果:
- 387名参与者完成了调查;所有报告HMB,50%经历了>12个月的抗凝药.
- 86%的人报告生活质量受到负面影响;只有43%的人接受了HMB治疗.
- 患者误解了低血栓形成风险的治疗风险,并在决策中优先考虑血栓形成风险 (83%).
结论:
- 在接受抗凝血药的患者中,HMB是未被认可和未得到治疗的.
- 患者对HMB治疗的误解和对血栓形成风险的强烈关注需要注意.
- 干预措施应加强患者教育和决策支持,以便在这个人群中管理HMB.
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