测量与多病症患者的一般实践相关的治疗负担:开发和验证PROM
Anna Bernhardt Lyhnebeck1, Anne Holm2, Sussi Friis Buhl3
1Department of Public Health, University of Copenhagen Centre of General Practice, Copenhagen, Denmark.
Family medicine and community health
|August 17, 2025
概括
研究人员开发了一种30项患者报告结果指标 (PROM),以评估多病症患者的治疗负担. 个别项目显示出与多发病率问卷第1部分 (MMQ1) 结合使用的希望.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 患者报告的结果
- 多发病性疾病管理
背景情况:
- 评估多病症患者的治疗负担对于有效的全科医院护理至关重要.
- 现有的患者报告结果指标 (PROM) 可能无法充分捕捉这一群体的治疗负担.
- 多发病率问卷第1部分 (MMQ1) 是一个相关的工具,但可能需要采取补充措施.
研究的目的:
- 确定或开发并验证PROM以评估多病症患者在一般实践中的治疗负担.
- 为了确保PROM适合与MMQ1一起使用,而不会导致患者超负荷.
- 创建一个可以理解,清晰,完整和与患者相关的措施.
主要方法:
- 进行了系统的文献审查,以找到治疗负担的现有PROM.
- 如果没有找到合适的措施,则使用现有项目开发了一个PROM草案.
- 小组和个人访谈为PROM的发展提供了信息,随后对初级保健患者进行了心理测量验证.
主要成果:
- 在文献审查中,没有确定治疗负担的合格PROM.
- 制定了30项PROM草案,涵盖6个领域:治疗信息,药物,预约,自我监测,健康行为和卫生系统联系.
- 虽然整体PROM及其领域缺乏足够的心理测量特性,但个别项目表现出良好的标准有效性和对变化的敏感性.
结论:
- 为评估多病症患者的治疗负担,开发了一个具有高含量有效性的30项PROM.
- 开发的PROM中的单个项目显示出作为MMQ1.1的补充措施的潜力.
- 这些经过验证的单个项目可以加强对初级保健机构治疗负担的评估.
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