自闭症儿童的生活质量:自我和照顾者代理报告之间的差异以及与个体特征的关联
Emily C Skaletski1,2, Rebekah M Rodriguez2, Sharon G Gartland3
1Department of Kinesiology, University of Wisconsin-Madison, Madison, Wisconsin, USA.
概括
自闭症儿童的生活质量 (QoL) 根据谁报告它而有所不同. 感官和睡眠问题影响了生活质量,突出了对自我和照顾者的观点的需要.
科学领域:
- 神经发育障碍 神经发育障碍
- 儿童心理学 儿童心理学
- 生活质量研究 研究 生命质量研究
背景情况:
- 生活质量 (QoL) 对自闭症患者至关重要.
- 现有的研究往往依赖于护理人员的报告,可能错过了自闭症儿童的观点.
- 自我和照顾者在自闭症儿童中报告的 QoL 之间的差异尚未得到充分理解.
研究的目的:
- 在自闭症儿童中评估自我和照顾者报告的 QoL 之间的一致性.
- 从两个角度来研究个人特征如何与QoL相关.
- 为了确定影响自闭症儿童的 QoL 的因素.
主要方法:
- 这项研究涉及74名自闭症儿童,年龄为5.0410.99岁,智商在47141.99之间.
- 将自我报告的QOL与照顾者代理报告的QOL进行了比较.
- 检查了QOL与年龄,智商,自闭症特征,多动症特征,睡眠和感官困难之间的关系.
主要成果:
- 在自我和照顾者报告的 QoL 之间发现了差的一致性 (ICC = 0.16).
- 感官特征和睡眠困难在两种记者类型中都与 QoL 一致相关.
- 年龄和智商与QoL没有显著的关系.
- 自闭症和ADHD特征与 QoL 的关联主要是由护理人员的报告驱动的.
结论:
- 衡量自我和护理人员报告的QOL对于全面理解至关重要.
- 感官特征和睡眠困难是影响自闭症儿童生活质量的关键因素.
- 与自我报告相比,护理人员的报告可能会过度强调某些特征对 QoL 的影响.
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