评估儿童瘤学的希望:发展,内容和面对验证的家长问卷问卷
Laurine Milville1, Pascal Antoine1, Sophie Lelorain2
1Univ. Lille, CNRS, UMR 9193 - SCALab - Sciences cognitives et Sciences Affectives, Lille, France.
概括
关于儿科瘤学家长希望问卷 (Q-PHPO) 的内容和面部有效性得到了开发和验证. 该工具评估了家长在儿童癌症治疗期间对信息的理解和他们的希望.
科学领域:
- 儿科瘤学 儿科瘤学
- 心理社会瘤学
- 健康心理学 心理健康心理学
背景情况:
- 开发可靠的仪器对于评估患者和家庭在瘤学方面的经验至关重要.
- 父母的希望和对医疗信息的理解显著影响了儿童癌症期间的心理社会福祉.
- 关于儿童瘤学家长希望的问卷 (Q-PHPO) 是为了满足这一需求而创建的.
研究的目的:
- 概述Q-PHPO的创建过程.
- 评估Q-PHPO的内容和面对有效性.
- 建立一个工具来衡量家长的希望和信息理解在儿科瘤学.
主要方法:
- 文献审查和与患有癌症儿童的家长的采访为问卷的开发提供了信息.
- 专家家长和专业人士对内容和面部有效性进行了定量和定性评估.
- 患者和公众参与和参与 (PPIE) 原则指导了开发和评估.
主要成果:
- Q-PHPO表现出良好的内容和面部有效性,大多数项目获得了高清晰度和相关性分数.
- 通过专家审查,项目清晰度 (I-CVI ≥ 0.80) 和相关性 (I-CVI ≥ 0.70) 得到证实.
- 修订后的Q-PHPO由两个部分组成,具体的维度涉及儿童和父母的心理社会福祉和疾病理解.
结论:
- Q-PHPO提供了内容和面部有效性的证据,表明其作为儿科瘤学的宝贵工具的潜力.
- 需要进一步的研究来确认问卷的构造有效性,标准有效性和可靠性.
- 该Q-PHPO可以帮助理解和支持家庭导航儿科癌症诊断.
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