增加黑人中风幸存者的代表性在阿法西亚研究:一个社区推广试点
Skayina Boucard1, June Bracken1, Tina Harris1
1School of Health and Rehabilitation Sciences, University of Pittsburgh, PA.
American journal of speech-language pathology
|August 19, 2025
概括
社区外展旨在增加在临床试验中的黑人中风幸存者. 试点项目确定了知识和运输障碍,以及沟通缺口等未满足的需求,但没有显著增加转诊率.
科学领域:
- 神经学 神经学
- 语音语言病理学 语言病理学
- 健康差异 在健康上的差异
背景情况:
- 与白人美国人相比,黑人美国人患中风的发病率和残疾率更高.
- 在临床试验中,黑人脑卒中幸存者在临床试验中代表性不足,这限制了研究结果的概括性.
- 解决这种差异对于公平的中风康复研究至关重要.
研究的目的:
- 增加黑人中风幸存者在研究中的表现和参与.
- 在这个人群中识别听障碍参与研究的障碍.
- 了解黑人中风幸存者与失言症的未满足的社区需求.
主要方法:
- 一个为期12个月的社区外展试点,主要在黑人社区.
- 由社区外展大使领导,包括现场访问和社区活动表.
- 对黑人中风幸存者的半结构面试进行定性分析,以确定障碍和需求.
主要成果:
- 超过100人参与,但新的转介是有限的.
- 确定的障碍包括缺乏知识和运输问题.
- 未满足的需求集中在沟通缺陷,社会隔离和心理健康问题上.
结论:
- 该试点确定了黑人中风幸存者参与研究的关键障碍.
- 虽然直接推没有大幅增加,但建立了积极的社区关系.
- 为未来的社区参与研究提供指导.
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