在克罗恩病的年轻和中年患者中,在家进行肠道营养自我管理的挑战:一项定性研究
Jing Wang1,2,3, Zhehao Zhang1,2,3, Meng Yang4,2,3
1Department of Gastroenterology, The First People's Hospital of Lianyungang, Lianyungang, Jiangsu, China.
BMJ open
|August 19, 2025
概括
患有克罗恩病 (CD) 的年轻和中年患者经历了管理家庭肠道营养 (HEN) 的显著心理和实际困难. 解决这些挑战对于改善他们的自我管理和治疗的坚持至关重要.
科学领域:
- 胃肠病学 胃肠病学
- 患者自我管理
- 定性研究是指质量研究.
背景情况:
- 克罗恩病 (CD) 管理通常需要长期的家庭肠道营养 (HEN).
- 患有CD的年轻人和中年成人在适应HEN时面临着独特的挑战.
- 有效的自我管理策略对于治疗坚持和生活质量至关重要.
研究的目的:
- 探索年轻和中年CD患者在管理HEN时遇到的挑战.
- 确定可以增强这些患者自我管理和治疗坚持的策略.
主要方法:
- 采用了定性现象学研究设计.
- 通过半结构面试收集数据,对14名被诊断患有CD和HEN的参与者 (18-60岁) 进行了采访.
- 这项研究是在中国江苏的三级医院进行的.
主要成果:
- 挑战出现了两个主要主题:主观 (心理负担,自我管理信心,疾病感知) 和客观 (社会限制,经济负担,不足的支持系统).
- 这些挑战极大地影响了患者的身体和心理健康.
- 参与者报告说,由于HEN管理,他们在日常生活中遇到了困难.
结论:
- 患有CD的年轻和中年患者在HEN管理中遇到大量的主观和客观障碍.
- 这些挑战会对他们的整体福祉产生负面影响.
- 有针对性的干预措施是必要的,以改善对CD患者的HEN自我管理的支持.
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