通过以人为中心的设计,为儿科肝移植患者共同制作健康倡导者干预措施
Telly Cheung1, James E Squires2, Bethany Bautista1
1Department of Pediatrics, Division of Pediatric Gastroenterology, Hepatology, and Nutrition, University of California, San Francisco, San Francisco, California, USA.
概括
一个新的导航角色被设计为儿科肝移植护理,专注于解决社会风险和改善家庭获取资源. 这一角色旨在通过支持护理人员和协调服务来弥补护理差距并改善患者的结果.
科学领域:
- 儿童医疗服务
- 移植医学
- 医疗服务研究
背景情况:
- 医疗保健系统越来越多地使用导航器来减少不平等.
- 儿童肝移植的导航策略仍未得到充分研究.
- 社会风险对接受儿科肝移植的家庭产生重大影响.
研究的目的:
- 用以以人为中心的设计来设计儿童肝脏移植的导航角色.
- 确定护理人员和移植团队需要的导航支持.
- 解决儿童肝移植患者的护理缺口和社会风险.
主要方法:
- 人为中心的设计方法.
- 虚拟聚焦小组由10名护理人员和6名移植医生组成.
- 对焦组成绩单进行定性分析,以确定工作的基本功能.
主要成果:
- 照顾者表示收入低,贫困和经济压力.
- 护理人员希望在社区资源,医疗团队关系,预约准备,学校沟通和文化差异方面得到帮助.
- 移植团队寻求导航员的帮助,以满足社会经济需求,协调预约,以及文化/语言一致的护理.
结论:
- 设计了一种为儿童移植肝脏提供护理的原型导航器.
- 这种导航角色解决了护理人员和移植团队的需求.
- 未来的研究应该评估导航角色对移植后结果的影响.
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