对心脏病的产前咨询:理解和沟通缺口的感知
Katherine J DeWeert1, Melissa K Cousino2, Sunkyung Yu2
1Department of Pediatrics, University of Michigan, Ann Arbor, MI, USA. kadeweer@med.umich.edu.
概括
父母对胎儿先天性心脏病 (CHD) 诊断的理解与医生在许多方面的看法一致. 然而,关于产前咨询后的死亡率和长期结果仍然存在重大知识差距.
科学领域:
- 儿童心脏病学
- 胎儿医学
- 医疗教育
背景情况:
- 在先天性心脏病 (CHD) 的产前咨询后,家长的理解是有限的.
- 评估父母对胎儿心脏病诊断的了解对于明智的决策至关重要.
- 评估医生和家长的理解之间的一致性至关重要.
研究的目的:
- 评估父母对胎儿心脏病诊断的了解.
- 评估医生和家长对父母理解的评估之间的一致性.
- 确定产前心血管疾病咨询的具体知识缺口.
主要方法:
- 对儿科心脏病专家和诊断为心脏病的胎儿的父母进行配对调查.
- 评估父母对诊断,治疗和并发症的知识.
- 用于测量一致性的Gwet协议系数 (GAC).
主要成果:
- 在诊断 (GAC 0. 89),新生儿手术 (GAC 0. 81) 和终身护理 (GAC 0. 66) 中观察到良好的一致性.
- 心脏病专家认为父母对死亡率和神经发育风险的理解很高.
- 父母对死亡率 (GAC - 0. 04) 和神经发育结果 (GAC 0. 05) 的了解很差.
结论:
- 在许多心脏病咨询方面,家长的知识通常与心脏病专家的看法一致.
- 发现有关家长对死亡率和长期结果的沟通缺口.
- 需要改进沟通策略来解决产前心血管疾病咨询方面的知识缺陷.
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