在家庭中心照顾头部创伤的儿童
Celina Cerf1, TjaMeika Purnell2, Miya R Asato1
1Department of Neurology, Kennedy Krieger Institute, Johns Hopkins School of Medicine, Baltimore, MD, USA.
照顾严重神经损伤的儿童,包括头部受伤的家庭, 面临着复杂的照顾需求的重大挑战. 改善医疗保健系统的支持和资源对于成功的家庭适应和参与儿童神经病学至关重要.
科学领域:
- 儿童神经病学
- 家庭医学
- 儿童虐待 儿科
背景情况:
- 家庭适应严重的儿童神经障碍始于医院,
- 虐待头部创伤带来了独特的社会层面,
- 家庭为中心的护理原则至关重要, 但在没有足够的指导的情况下,
研究的目的:
- 确定家庭在门诊环境中适应严重的儿童神经障碍所面临的挑战.
- 审查现有的以家庭为中心的干预措施和参与机会.
- 提出改善神经病学实践的策略, 以更好地支持这些家庭.
主要方法:
- 对现有文献进行专题审查.
- 确定家庭和提供者特定的导航挑战.
- 分析可用的以家庭为中心的干预措施和参与策略.
主要成果:
- 医疗保健系统存在许多障碍,导致家庭孤立,难以管理复杂的护理.
- 在门诊和多学科环境中, 家庭往往缺乏足够的指导和资源.
- 对于门诊护理的家庭和提供者来说存在导航挑战.
结论:
- 解决系统性障碍对于有效的家庭适应和护理管理至关重要.
- 在儿童神经病学中需要加强家庭参与和有针对性的干预.
- 神经学实践需要策略来更好地支持患有严重神经障碍儿童的家庭.
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