我们所有人研究计划的社交媒体覆盖不足的人口:混合方法分析
Dennis J Zhang1, Michael G Bentz2, Janet K Shim3
1Department of Biological Sciences, Columbia University, 1212 Amsterdam Ave, New York, NY, 10027, United States.
Journal of medical Internet research
|August 22, 2025
概括
我们所有人研究计划 (AoURP) 使用社交媒体招募各种参与者, 但消息有时缺乏明确参与如何解决健康差异. 对于研究损害和数据不平等的机构责任存在担忧.
科学领域:
- 精准医学
- 数字卫生宣传
- 健康差异研究
背景情况:
- 我们所有人的研究计划 (AoURP) 旨在通过数字宣传促进多元化的参与.
- 人们对代表性不足的群体的实际利益和对研究损害的机构责任感到担忧.
研究的目的:
- 检查AoURP对"多样性"的概念化和社交媒体的实施.
- 分析在代表性不足的人群的招聘呼吁中使用团结的信息.
主要方法:
- 对380个AoURP社交媒体帖子 (2020-2021) 的混合方法分析.
- 编码为"在生物医学研究中代表性不足" (UBR) 的类别和类型的上诉 (个人与团结).
- 针对与福利,共同目标和不公正有关的语言的UBR目标帖子的主题分析.
主要成果:
- "种族和民族" (49%) 和"年龄" (19%) 是社交媒体上最受关注的UBR类别.
- 招聘呼吁包括个人福利 (遗传结果),社区福利 (疾病倾向),共同目标 (改善健康) 和解决差异.
结论:
- 但也引发了人们的担忧.
- 参与与解决健康差异之间的联系不清楚,以及对机构在数据差异中的作用的不完全承认.
- 授权言论可能会将纠正差异的负担转移到参与者身上,
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