用于患者使用的Hidradenitis Suppurativa在线资源:系统搜索和分析
Emily Sheetz1, Aryn A Alanizi1, Joshua Edwards1
1Eastern Virginia Medical School, 721 Fairfax Ave, Norfolk, VA, 23507, United States, 1 6106099276.
JMIR dermatology
|August 22, 2025
概括
这项研究评估了网上关于状腺炎 (HS) 的信息的质量和可读性. 许多医疗保健网站缺乏全面可靠的内容,阻碍了患者的理解和共同决策.
科学领域:
- 皮肤病学
- 卫生信息学
- 医疗沟通
背景情况:
- 在线可靠的健康信息对于患者教育和共同决策至关重要.
- 补腺炎 (HS) 是一种慢性炎症性皮肤疾病,需要明智的治疗.
- 患者经常在网上搜索信息, 需要对网站质量进行评估.
研究的目的:
- 评估讨论状腺炎 (HS) 的网站的质量和可读性.
- 为HS患者和医疗保健提供者确定可靠的在线资源.
- 评估这些资源的潜力,以提高患者的知识和医生与患者的沟通.
主要方法:
- 使用DISCERN仪器来评估信息质量.
- 应用Flesch-Kincaid可读性测试来测量文本的复杂性.
- 在谷歌和Bing上搜索有关Hidradenitis suppurativa (HS) 的网站.
主要成果:
- 使用DISCERN和Flesch-Kincaid指标评估HS网站的质量和可读性.
- 在线HS信息的质量和可理解性存在显著差异.
- 强调需要更可靠,更容易获得的HS患者教育材料.
结论:
- 许多公开的HS网站提供了低于最佳的质量和可读性.
- 改善在线HS资源可以提高患者的理解,并支持明智的治疗讨论.
- 需要进一步的研究来开发和传播以患者为中心的高质量HS信息.
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