"无穷无尽的挑战,决策和冲突" - - 癌症儿童的父母在儿童治疗过程中的解决问题经验:现象学研究
Tianji Zhou1, Wenjin Xiong2, Zhenyu Meng2
1Xiangya School of Nursing, Central South University, Changsha, Hunan, China; Department of Social and Behavioural Sciences, City University of Hong Kong, Hong Kong, China.
概括
患有癌症的孩子的父母面临着压倒性的照顾负担,家庭的破坏,以及各种各样的解决问题的方式. 干预措施可以加强应对这些挑战的机制.
科学领域:
- 心理学
- 癌症学
- 家庭学习
背景情况:
- 父母解决问题对儿童癌症的心理调整有很大影响.
- 对于父母在儿童癌症治疗期间所面临的挑战和应对策略的了解有限.
研究的目的:
- 探索家长在儿童癌症治疗过程中解决问题的经验.
- 确定家长遇到的主要问题及其应对机制.
主要方法:
- 在中国三所高等医院进行的描述性现象学研究.
- 从35位提供信息者 (个人采访中的22位家长,焦点组中的8位家长和5位医疗保健提供者) 收集的数据.
- 分析基于科拉伊齐的描述性分析框架.
主要成果:
- 主题1:过重的护理负担 (情绪上的痛苦,疲,社会孤立,医疗/心理管理,不确定性).
- 主题2:家庭混乱 (角色压力,婚姻紧张,经济压力).
- 主题3:不同的问题解决方式 (积极性/理性,被动性/回避性,冲动性/疏忽性).
结论:
- 父母面临着各种各样的挑战,
- 这些发现有助于医疗保健提供者制定有针对性的干预措施.
- 建议培训解决问题的技巧, 以提高家长的应对能力, 克服功能障碍.
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