儿童突然死亡后家庭的需求和经验:一个定性研究
Emily Cooper1, Jonathan Holmes2, Nikki Speed3
1Law and Policing, University of Central Lancashire - Preston Campus, Preston, UK.
BMJ paediatrics open
|August 24, 2025
概括
那些突然而不明原因的孩子的父母需要更好的支持. 主要改进包括创伤信息沟通和积极的专业参与, 在调查期间帮助家庭.
科学领域:
- 儿童健康
- 法医病理学
- 关于悲伤和丧失的研究
背景情况:
- 儿童突然死亡 (SUDC) 是一个罕见的,但对家庭来说是毁灭性的事件.
- 英国的法定调查涉及多个机构来确定儿童意外死亡的原因.
- 对于父母对 SUDC 调查的经验有有限的研究.
研究的目的:
- 探讨英国1至17岁儿童SUDC后丧亲的经历.
- 确定需要改善的调查和支持过程.
- 了解父母在沟通,关键工作者和医疗检查方面的需求.
主要方法:
- 招募了在英国因SUDC (2018-2022) 死亡的儿童 (1-17岁) 的丧亲父母.
- 在2023年对20个家庭的家长进行了半结构面试.
- 使用主题分析来解释采访成绩单.
主要成果:
- 确定了关键主题:关键工作人员的重要性,创伤信息沟通,专业主动性和家庭医疗查.
- 在20个家庭中,只有12个家庭获得了关键工作人员; 沟通,特别是通过电话关于死后的沟通, 造成了痛苦.
- 父母经常向专业人士介绍SUDC,强调知识缺口;需要积极的医疗查.
结论:
- 家庭需要在SUDC调查期间从专业人员那里获得快速,主动和知识博的沟通.
- 改善沟通可以减轻父母悲伤和整体调查经验的负面影响.
- 父母希望明确死亡原因, 并提倡在调查过程中提高一致性和有效性.
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