患有神经发育障碍的儿童及其主要照顾者的参与协议:出席,参与和感知到重要的活动
Lin-Ju Kang1,2, Mats Granlund3,4,5, Karina Huus3,5,6
1Graduate Institute of Early Intervention, College of Medicine, Chang Gung University, Taoyuan, Taiwan.
Disability and rehabilitation
|August 25, 2025
概括
患有神经发育障碍 (NDD) 的儿童及其照顾者对参与表示轻微至中度的同意. 孩子们优先考虑社交活动和学习,强调在设定目标时需要自己的观点.
科学领域:
- 儿童职业治疗
- 发展心理学
- 儿童健康研究
背景情况:
- 患有神经发育障碍 (NDD) 的儿童往往有独特的参与需求和观点.
- 对于有效的干预和目标设定至关重要.
- 现有研究可能无法完全捕捉孩子和照顾者的参与感受细微差别.
研究的目的:
- 调查NDD儿童与其主要照顾者之间关于感知参与的出席和参与的项目级协议.
- 找出患有NDD的儿童及其照顾者如何选择重要活动的差异.
- 在儿童群体中制定协作目标的治疗策略.
主要方法:
- 143名患有NDD (6-12岁) 的儿童和130名主要照顾者单独完成了我的参与图像 (PmP) 工具.
- 计算了加权的卡帕系数和绝对一致性,以评估儿童护理人员在出席和参与方面的一致性.
- 分析了儿童和照顾者认为最重要的活动的频率.
主要成果:
- 在患有NDD的儿童和照顾者之间观察到轻微到中度的一致性 (κ = 0. 10 0. 48).
- 与照顾者相比,患有NDD的儿童更频繁地认为社交活动,照顾,个人照顾和学校学习是重要的.
- 显著的差异突出了人们对参与的不同优先级.
结论:
- 低达成的协议强调了将儿童的观点纳入合作目标设定过程的必要性.
- 临床医生应该使用量身定制的工具和策略来弥合儿童和照顾者的参与观点之间的差距.
- 促进参与目标的共同构建需要承认和解决这些不同的看法.
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