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评估慢性淋巴细胞白血病和骨髓质综合征患者生活质量的电子健康干预:MyPal随机对照试验

Thomas Chatzikonstantinou¹, Maria Vasilopoulou¹, Dimitrios Kyrou¹

¹Institute of Applied Biosciences, Centre for Research and Technology Hellas, Thessaloniki, Greece.

JCO oncology practice

|August 25, 2025

概括

在患有慢性淋巴细胞白血病 (CLL) 和骨髓发育综合征 (MDS) 的患者中,MyPal eHealth干预显著降低了疼痛并改善了生活质量 (QoL). 这种数字健康工具增强了QOL方面,显示出对这些患者群体的症状管理有希望的结果.

科学领域:

癌症学
数字健康
生活质量研究

背景情况:

慢性淋巴细胞白血病 (CLL) 和骨髓发育综合征 (MDS) 是影响患者生活质量的血液恶性瘤.
通过加强症状监测和沟通,电子卫生干预提供了一种新方法来支持患有慢性疾病的患者.

研究的目的:

评估MyPal电子健康干预措施在改善CLL和MDS患者的QOL方面的有效性.
评估数字健康平台对血液恶性瘤的症状报告和患者报告结果的影响.

主要方法:

一项随机对照试验 (NCT04370457) 涉及171名患有CLL或MDS的患者.
患者被分配到MyPal数字健康平台 (智能手机应用程序的QOL和症状报告) 或标准护理.
在使用EORTC QLQ- C30,EQ- 5D- 3L和IPOS等验证问卷时评估了QOL和症状.

主要成果:

与对照组相比,MyPal干预组显示疼痛有显著的减少.
在干预组内,在埃德蒙顿症状评估系统 (ESAS),简要疼痛清单 (BPI) 和情绪温度计 (ET) 尺度上观察到改善.
干预组的家庭参与度随着时间的推移而增加,而其他QOL指标在不同组之间基本保持不变. 整体存活率 (OS) 类似.

结论:

MyPal电子健康干预有效改善了特定的QOL方面,特别是减少了CLL和MDS患者的疼痛.
数字健康工具显示出在血液癌症治疗中增强症状管理和患者支持的潜力.

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