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艾滋病毒感染者在微博上的知名度:定性研究

Leixiao Zeng^1,2, Yunze Zhao¹, Wai-Kit Ming^2,3

¹School of Journalism and Communication, Renmin University of China, Beijing, China.

Journal of medical Internet research

|August 25, 2025

概括

在中国, 艾滋病毒感染者使用新浪微博以获得知名度, 这凸显了支持性在线健康社区的必要性,

科学领域:

数字健康
社会科学
公共卫生

背景情况:

在中国有超过1223万人感染艾滋病毒,
新浪微博是一个主要的社交媒体平台,
社交媒体上的知名度被理解为被看到的能力以及与之相关的权力动态.

研究的目的:

探索"A-friends"如何在新浪微博上管理自己的知名度.
探讨可见性的双重性,这可以赋予边缘化群体权力,同时也让他们面临风险.
推动支持性数字环境的发展,以平衡艾滋病毒感染者的权力和保护.

主要方法:

与30名艾滋病毒感染者 (A-friends) 进行非参与观察和半结构面试.
参与者是通过社交媒体平台的机会和雪球抽样招募的.
使用NVivo 11.0进行主题分析.

主要成果:

两个总体主题出现了:"爬行效应" (积极的可见性结果) 和"滑动效应" (负面的可见性结果).
"登效应"包括自我重建,社区建设和公众宣传.
"滑坡效应"包括社会排斥,隐私问题和自我消耗.

结论:

在线健康社区的可见性是多层次的,循环的,被概念化为"可见性梯级模型".
自我,社会和公众的知名度提供了个人成长和集体行动等好处, 但也带来了自我耻辱和隐私侵犯等风险.
未来的努力应集中在提高电子健康素养,加强隐私,促进包容性数字空间,以减轻在线可见性的危害和优化好处.

关键词:

授权不平等问题在线健康社区社交媒体污名化可见性

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