治疗决策的儿童和青少年癌症沟通偏好:综合分析
Kimberly A Pyke-Grimm1,2, Katherine Patterson Kelly3,4, Ginny L Schulz5
1Department of Nursing Research and Evidence-Based Practice, Center for Professional Excellence and Inquiry, Stanford Medicine Children's Health, Palo Alto, California, USA.
Pediatric blood & cancer
|August 26, 2025
概括
儿童和青少年希望积极参与癌症治疗决策. 这项研究综合了他们对参与治疗决策 (TDM) 的偏好,以改善沟通.
科学领域:
- 儿童瘤学
- 关于健康的信息
- 质量研究
背景情况:
- 儿童和青少年 (< 18 岁) 对癌症治疗沟通的偏好有所不同.
- 了解这些偏好对于以患者为中心的护理至关重要.
- 这项研究侧重于他们参与癌症治疗决策 (TDM).
研究的目的:
- 综合有关儿童和青少年参与癌症治疗沟通的定性发现.
- 描述年轻癌症患者对TDM参与的看法.
主要方法:
- 使用元聚合方法进行了系统的文献搜索.
- 其中包括使用定性或混合方法的18岁以下患儿癌症的参与者.
- 结果仅限于儿童和青少年自我报告的偏好.
主要成果:
- 从 3213 个已识别的文章中,包括了 55 篇文章,从 39 个研究中得出了 156 项关于 TDM 偏好的发现.
- 三个综合的发现出现了:"我如何参与"",我什么时候不参与"和"我为什么参与"TDM.
- 偏好从被动到积极的决策角色.
结论:
- 这一元综合阐明了儿童和青少年如何,何时以及为什么希望参与癌症TDM.
- 患者的声音显示出他们对参与的偏好不同.
- 建议侧重于以证据为基础的做法,以符合这些沟通偏好.
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