语音障碍患者定制电子报告结果 (ACe-PRO) 的内容有效性 - 揭示中风后隐藏的困难
Frederik Gybel Jensen1, Helle Klingenberg Iversen1, Troels Wienecke2
1Department of Neurology, Copenhagen University Hospital - Rigshospitalet, Copenhagen, Denmark; Faculty of Health and Medical Sciences, University of Copenhagen, Department of Clinical Medicine, Copenhagen, Denmark.
为了更清晰和更易理解,需要修改非语障定制电子患者报告结果 (ACe-PRO) 问卷. 建议进一步测试以确保在中风幸存者的临床实践中的有效性.
科学领域:
- 神经学
- 康复医学
- 医疗信息学
背景情况:
- 脑卒中后的失言症会带来沟通上的困难,
- 患者报告的结果测量 (PROM) 对于了解患者经验和指导治疗至关重要.
- 现有的工具可能无法充分捕捉口音障碍患者的具体需求.
研究的目的:
- 评估"口音障碍定制电子患者报告结果" (ACe-PRO) 问卷的内容有效性.
- 评估ACe-PRO对中风后失言症患者的相关性,全面性和可理解性.
- 确定必要的修改,以提高ACe-PRO在临床环境中的对话工具的实用性.
主要方法:
- 该研究遵循COSMIN评估内容有效性的指导方针.
- 对9名口音障碍患者进行认知采访.
- 对17名医疗保健专业人员进行了结构化和半结构化采访.
主要成果:
- 无论是患有失言症的患者还是医疗保健专业人员都认为ACe- PRO具有相关性.
- 医疗专业人员指出一些项目含有不清晰的概念,而患者则指出词汇和视觉辅助工具存在问题.
- 调查问卷的全面性被评为很好,并提出了一些建议.
结论:
- ACe-PRO显示部分相关性,但需要修改以提高可理解性,特别是在项目措辞,图片支持和响应尺度方面.
- 需要进一步的研究来评估临床实践中的受访者负担.
- 建议使用数字格式验证ACe-PRO.
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