一个电子系统的开发,用于与癌症儿童及其照顾者一起跟踪自身/代理症状:一个共同设计的示例
Stacey Crane1, Aaron Ganci2, Sheri L Robb3
1Cizik School of Nursing, University of Texas Health Science Center at Houston, Houston, TX, USA. stacey.crane@uth.tmc.edu.
概括
与癌症儿童和护理人员共同设计电子症状追踪器改善了沟通,并确定了更好的症状管理需求. 该系统旨在集中信息,确保临床医生及时响应,以改善儿童癌症护理.
科学领域:
- 儿童瘤学
- 医疗信息学
- 人与计算机的交互
背景情况:
- 对儿童癌症进行及时干预至关重要.
- 电子患者报告结果 (ePRO) 工具有助于症状评估和临床医生通知.
- 共同设计方法将最终用户的投入纳入工具开发中.
研究的目的:
- 描述为癌症儿童及其照顾者开发电子症状跟踪系统的共同设计过程.
- 确定有效的儿童癌症症状管理系统的基本特征.
主要方法:
- 使用"未来研讨会"形式的协作设计会议.
- 六名患有癌症的儿童和七名照顾者的参与.
- 共同设计数据的描述性主题分析.
主要成果:
- 确定的主题:医疗团队关系的重要性,症状报告中的错误沟通,集中信息的需要和及时的临床反应.
- 儿童难以表达症状; 护理人员感到担忧和宣传负担.
- 突出了电子系统的一致使用的挑战.
结论:
- 共同设计有效地识别用户需求,并为临床问题开发解决方案.
- 让最终用户参与进来,使得工具得到更多的采用和有效性.
- 电子系统的关键特征包括简单性,参与度和明显的用户效益, 改善了儿童癌症护理中的症状跟踪和管理.
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