1型糖尿病儿童的父母所经历的压力和负担 - - 质量内容分析采访研究
Åsa Carlsund1, Sara Olsson1, Åsa Hörnsten1
1Department of Nursing, Umeå University, 901 87 Umeå, Sweden.
Children (Basel, Switzerland)
|August 28, 2025
概括
儿童1型糖尿病 (T1D) 的家长治疗会导致严重的压力和疲劳. 支持系统对于缓解慢性疾病的家庭的情感和实际负担至关重要.
科学领域:
- 儿童内分泌学
- 家庭心理学
- 慢性疾病管理
背景情况:
- 家长的参与对于儿童1型糖尿病 (T1D) 的自我管理至关重要.
- 父母的高参与度会导致情绪,认知和身体疲劳.
- 了解对父母的社会心理影响对于家庭幸福至关重要.
研究的目的:
- 描述1型糖尿病儿童的父母所经历的压力和负担.
主要方法:
- 使用内容分析的定性方法.
- 采访了16名患有T1D的10至17岁儿童的父母.
- 在2025年1月至2月期间收集的数据.
主要成果:
- 1型糖尿病管理影响家庭关系,包括伴侣和兄弟姐妹的动态.
- 父母会感到疲,睡眠障碍,认知障碍以及失去正常状态.
- 孩子的独立与管理的平衡加剧了父母的挑战.
结论:
- 强大的支持系统对于患有T1D的家庭至关重要.
- 关键的支持因素包括可靠的学校,技术,社交网络和医疗服务.
- 这些支持减轻了父母的负担,并改善了儿童的健康状况.
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