识别和评估患者的移动和网络应用程序来管理腺炎:在应用商店和内容分析中进行系统搜索
Caroline Glatzel1, Tassilo Dege1, Bernadette Glatzel1
1Department of Dermatology, Venereology and Allergology, University Hospital Würzburg, Josef-Schneider-Strasse 2, Würzburg, 97080, Germany, 49 931 201 26369, 49 931 201 26700.
JMIR mHealth and uHealth
|August 29, 2025
概括
很少有高质量的移动健康应用程序用于治疗腹炎 (HS). 患者评价一个应用程序高于医生, 突出不同优先级和数字化医疗保健工具的合作开发的需要.
科学领域:
- 皮肤病学
- 卫生信息学
- 数字健康
背景情况:
- 补腺炎 (HS) 是一种慢性炎症性皮肤疾病,导致患者严重的痛苦和医疗负担.
- 早期诊断和有效治疗对于治疗HS和改善生活质量至关重要.
- 患者和医疗保健系统面临的挑战有助于优化治疗和诊断延迟.
研究的目的:
- 识别和评估为腹炎患者设计的移动健康应用 (MHA) 的质量.
- 通过患者和医生的视角来评估应用的质量.
- 了解与高压管理应用程序相关的用户体验和技术亲和力.
主要方法:
- 一个系统的搜索确定了HS的MHA,不包括那些广告或非患者中心的内容.
- 20名医生和27名患者使用标准化评分表 (MARS, uMARS, GMUQ) 和技术亲和度工具评估了两个选定的应用程序.
- 数据分析的重点是比较患者和医生的评分,可用性和技术互动.
主要成果:
- 在最初的29个应用程序中,只有两个HS特定的MHA符合纳入标准.
- 患者对HSR-Patients应用的评分明显高于医生 (p=. 009),而对EHSF-Hidradenitis Suppurativa应用的评分没有显著差异.
- 两种应用程序的可用性评级在患者和医生之间没有显著差异,尽管患者通常表现出更高的技术亲和力.
结论:
- 提供高质量的,针对HS的MHA有限,这表明需要改进数字健康工具.
- 患者和医生对MHA的评价不同,患者优先考虑可用性,医生关注内容.
- 两种应用都没有显示出足够的长期使用潜力,强调需要所有利益相关方参与开发.
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