影响胰腺癌患者知情决策的因素:一种定性研究
Patrick L Quinn1, Ann Scheck McAlearney1, Jennifer Eramo1
1The Ohio State University Wexner Medical Center, Columbus, OH, USA.
概括
由于复杂的治疗方法, 胰腺癌患者难以做出明智的决定. 决策辅助工具可能有所帮助, 但信息过载是患者的担忧.
科学领域:
- 癌症学
- 有耐心的决策
背景情况:
- 有信息的决策对于癌症护理的共同决策至关重要.
- 胰腺癌 (PC) 治疗的复杂性对知情决策构成挑战.
研究的目的:
- 探索胰腺癌患者知情决策的障碍和促进因素.
- 了解决策辅助如何影响患者的理解和决策.
主要方法:
- 使用半结构面试对20名胰腺癌患者进行定性研究.
- 目的性抽样直到主题和;采访采用整合方法转录和分析.
主要成果:
- 大多数患者报告有关PC治疗选择的知识缺口.
- 患者对了解治疗的好坏以及支持性/息性护理的决策辅助表示兴趣.
- 人们普遍担心决策辅助工具的信息过载.
结论:
- 胰腺癌患者面临着明智和共享决策的重大挑战.
- 与决策辅助工具一样,以患者为中心的策略需要进一步的研究来提高决策质量.
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