使用Q方法赋予父母新生儿决策权力:制定死肠炎决策指导框架
Rosa Verhoeven1, Elisabeth M W Kooi2, Sylvia A Obermann-Borst3
1Department of Surgery, Division of Pediatric Surgery, University of Groningen, University Medical Center Groningen, Groningen, the Netherlands; Department of Neonatology, Beatrix Children's Hospital, University of Groningen, University Medical Center Groningen, Groningen, the Netherlands.
父母们
科学领域:
- 新生儿手术
- 儿童医疗决策
- 医学伦理
背景情况:
- 手术性死性肠球炎 (NEC) 具有显著的外科风险.
- 对于患有NEC的婴儿来说,
研究的目的:
- 在新生儿手术背景下探索父母的决策过程.
- 调查Q-方法作为一个框架来赋予父母复杂的医疗选择.
主要方法:
- 使用Q方法分析24个与决策相关的陈述的家长排名.
- 用于确定不同的决策配置文件的个别因素分析.
主要成果:
- 53名家长参与了调查,其中42名被分为五个不同类型.
- 在情感参与,医生依赖和长期后果考虑方面,
结论:
- Q方法有效地揭示了家长对关键新生儿护理的决策模式.
- 结果支持制定决策指导框架,以改善共享决策和沟通.
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