实现安全和自主决定的健康数据共享和同意管理
Cindy Welzel1, Max Ostermann1, Hannah Louise Smith2
1Else Kröner Fresenius Center for Digital Health, TUD Dresden University of Technology, Dresden, 01307, Germany.
NPJ digital medicine
|August 30, 2025
概括
对数字健康数据的有效同意管理建立信任并鼓励共享. 一个新的框架使用区块链和自主身份来跟踪数据使用,
科学领域:
- 数字健康
- 卫生信息学
- 数据隐私
背景情况:
- 数字健康工具从临床环境,应用程序和可穿戴设备中生成大量敏感的患者数据.
- 有效的同意管理对于建立患者信任和增加分享健康数据的意愿至关重要.
- 目前的系统往往缺乏跟踪同意和数据利用的强有力的机制.
研究的目的:
- 提出数字健康同意管理的新概念框架.
- 探索新兴技术的整合,以加强同意跟踪和数据利用.
- 为了平衡数据访问需求和患者隐私问题,促进医疗保健中的数据共享.
主要方法:
- 概念框架的发展.
- 审查相关技术,包括区块链,自主身份和非识别令牌.
- 对同意管理系统的整合策略的分析.
主要成果:
- 提出一个概念框架来管理数字健康中的同意.
- 区块链,自主身份和非识别令牌的整合提供了一个可行的方法.
- 该框架旨在提供同意和数据使用的透明跟踪.
结论:
- 拟议的框架可以增强对数字健康的信任,并鼓励数据共享.
- 通过技术整合可以实现数据访问和隐私的平衡.
- 这种方法有可能通过负责任的数据利用来改善医疗保健结果.
更多相关视频
11:21Methodology for Establishing a Community-Wide Life Laboratory for Capturing Unobtrusive and Continuous Remote Activity and Health Data
Published on: July 27, 2018
8.3K
09:00TBase - an Integrated Electronic Health Record and Research Database for Kidney Transplant Recipients
Published on: April 13, 2021
4.7K
相关概念视频
Ethical Standards I
962
The American Nurses Association (ANA) created and implemented the first nationally accepted Code of Ethics for Nurses with Interpretive Statements. The Code of Ethics is a living document regularly updated by the ANA and establishes an ethical standard that is non-negotiable for nurses in all roles and settings.
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
The Code of Ethics provisions outline the nurse's duty to the patient, the healthcare team, the profession, and society. The Code's fundamental principles include advocacy,...
962
Standards of Care II
725
Nurses bear specific legal responsibilities under several federal statutes, including:
725
Ethical Standards II
795
Ethical standards are the backbone of nursing practice, guiding nurses as they interact with patients, families, and colleagues. These standards are crucial for providing safe, empathetic care centered on the patient's needs.
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
Nurses are entrusted with upholding various ethical principles and standards. Nurses forge solid therapeutic relationships using trust, empathy, autonomy, confidentiality, and professional competence.
Confidentiality is crucial, embodying respect for individual privacy...
795
Purpose of Health Records I
1.3K
The vital purpose of health records is to provide a complete and accurate account of a patient's medical history, including communication, diagnostic and therapeutic orders, care planning, research, and quality review.
Here's a breakdown of how health records serve these purposes:
Here's a breakdown of how health records serve these purposes:
1.3K
Purpose of Health Records II
1.0K
Health records serve various essential purposes in the healthcare system. Here are some key purposes:
1.0K
Legal Guidelines for Documentation
1.4K
The legal guidelines for nursing documentation are essential for ensuring accurate, professional, and ethical recording of patient care. The guidelines are discussed here:
1.4K
