一项定性研究探讨了可治疗但不能治愈的癌症患者对预先护理计划的看法和理解
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在PubMed上查看摘要
概括
此摘要是机器生成的。可治疗但无法治愈的癌症患者因治疗不确定性而面临预先护理规划的挑战. 许多人不认为临床讨论是计划,
科学领域
- 癌症学
- 缓和护理
- 质量研究
背景情况
- 由于治疗创新带来的不确定的预后, 预先护理计划 (ACP) 对可治疗, 无法治愈的癌症患者至关重要.
- 了解这些患者如何处理未来的计划仍然有限.
研究的目的
- 探索患者对预先护理计划 (ACP) 的看法和理解.
- 专注于可治疗但无法治愈的癌症患者.
主要方法
- 对20名被诊断患有可治疗,无法治愈的癌症的患者进行了定性深度采访.
- 数据分析采用了社会构造主义范式中的反思性主题方法.
- 一些患者在采访中涉及家属.
主要成果
- 持续的新疗法延长了生存时间, 造成了不确定性,
- 患者面临着生存挑战,
- 大多数参与者没有将临床讨论,包括DNR订单,视为ACP,更喜欢为社会和葬礼安排进行家庭讨论.
- 一些有护理角色的患者积极参与ACP.
结论
- 对于可治疗,不可治愈的癌症患者来说,疾病进展的不确定性是一个重大挑战.
- 有可能需要将医疗规划讨论与社会/个人未来护理对话分开.
- 建议进一步研究生存不确定性的影响.
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