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Epilepsy is a chronic neurological disease marked by recurrent, unpredictable seizures. These seizures are caused by abnormal electrical discharges in the brain, leading to behavior, sensation, or consciousness alterations. They can also cause transient impairment of awareness, interfering with daily activities.
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耻辱的交叉性及其对的耻辱自我管理计划的影响

Sarah Prieto1, Elaine T Kiriakopoulos2, Allyson Goldstein3

  • 1Memory and Aging Program, Butler Hospital, Providence, RI, USA; Warren Alpert Medical School of Brown University, Department of Psychiatry and Human Behavior, Providence, RI, USA.

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概括

在RISE ABOVE项目中,人们发现患者受到了 stigma 的帮助. 然而,那些有多重交叉印的人的改善率较低,这表明需要量身定制的干预措施.

关键词:
行为干预交叉性干预行动在上方起自主管理污名化压力管理

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科学领域:

  • 心理学
  • 公共卫生
  • 神经学

背景情况:

  • 感知到的耻辱感对患者 (PWE) 造成严重的压力,尤其是那些被边缘化身份交叉的人.
  • 这项计划是作为一种自主在线干预来缓解PWE的耻辱感.
  • 这项研究分析了试点数据,以了解交叉的耻辱如何影响RISE ABOVE计划的感知和结果.

研究的目的:

  • 如何影响人们对RISE ABOVE计划可信度和用户期望的看法.
  • 评估交叉污名对用户对RISE ABOVE计划的满意度的影响.
  • 通过RISE ABOVE计划,研究PWE中的交叉耻辱和心理社会结果之间的关系.

主要方法:

  • 美国13个州的20名患有的不同参与者的试点数据的二次分析.
  • 参与者报告了除了之外的平均2.5个额外的污名.
  • 收集的数据包括项目可信度,预期,满意度和心理社会结果 (压力,自我效能,拒绝,孤独感,的耻辱感,社会角色满意度) 在基线,干预后和六个月后期评估.

主要成果:

  • 计划的可信度在不同群体之间是一致的,但较少交叉的耻辱感的个人报告了更高的变化期望.
  • 在压力,社会满意度,拒绝和的耻辱感方面观察到显著的改善 (Hedges' g = 0.57-1.15)
  • 主要观察到与较少交叉的耻辱感的参与者在孤独和社会角色满意度方面获得了自我效益和持续的改善.

结论:

  • 作为一种减少患者的耻辱性痛苦的干预措施,
  • 可能需要对RISE ABOVE计划进行定制的调整,以优化其对面临多种耻辱身份的PWE的有效性.
  • 需要进一步的研究来完善复杂交叉的PWE干预措施.