解决在线促成的污名化问题:在患有脊髓炎的患者中进行联合设计研讨会
Hasti Naghdali1, Parshan Mashhourinejad2, Abdul-Fatawu Abdulai3
1School of Nursing, The University of British Columbia, Vancouver, British Columbia, Canada.
BMJ open
|September 1, 2025
概括
患有脊髓乱的人共同设计数字平台以减少耻辱感. 关键策略包括全面信息,包容性设计,用户隐私和互动社区功能,以更好地支持性健康.
科学领域:
- 数字健康
- 人与计算机的交互
- 性健康问题
背景情况:
- 疼痛性交会对生活质量产生重大影响.
- 围绕失足症的耻辱通常会阻止个人寻求信息和支持.
- 数字健康平台提供了一个潜在的途径,
研究的目的:
- 共同设计数字健康平台策略与患有失足症的人一起,以减少耻辱感.
- 确定患者主导的方法,为性健康创造包容性和支持性的在线环境.
主要方法:
- 虚拟联合设计研讨会,
- 一个两阶段的数据收集过程:个别原型的创建,然后是协作设计.
- 对研讨会录音和转录的专题分析.
主要成果:
- 对于在线平台的脱而出有四个主题:广泛的不平等信息,包容性设计原则,强大的用户身份保护以及社区连接的交互功能.
- 参与者强调了以用户为中心的设计在解决污名化的重要性.
结论:
- 患者主导的策略可以有效地减轻数字卫生平台对失足症的耻辱.
- 调查结果可以指导开发更有效和敏感的在线性健康资源,
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