GRAPPA患者研究合作伙伴网络的组成和参与:调查以确定增长的战略领域
Christine A Lindsay1, Suzanne M Grieb2, Arnon Katz3
1C.A. Lindsay, PharmD, GRAPPA Patient Research Partner, Prosper, Texas, USA.
The Journal of rheumatology
|September 1, 2025
概括
牛皮和牛皮关节炎研究和评估小组 (GRAPPA) 患者研究合作伙伴 (PRP) 网络调查确定了性别平等和长期参与的优势. 它强调需要更多的种族和地理多样性来改善全球代表性.
科学领域:
- 关节病学
- 以患者为中心的研究
- 牛皮病的研究
背景情况:
- 牛皮和牛皮关节炎研究和评估小组 (GRAPPA) 患者研究合作伙伴 (PRP) 网络旨在增强全球范围和代表性.
- 了解当前网络的人口结构和参与度对于战略增长至关重要.
研究的目的:
- 调查GRAPPA患者研究合作伙伴 (PRP) 网络,以确定优势和缺陷.
- 为改善网络中的全球代表性和多样性制定战略.
主要方法:
- 在GRAPPAPRP网络的成员中进行了一项调查.
- 数据分析的重点是人口统计,参与和网络特征.
主要成果:
- 调查显示,PRP成员的性别平等程度很高,项目参与率也很高.
- 发现需要增加种族和地理多样性.
- 目前的网络构成需要扩展以包括代表性不足的地区和年龄组.
结论:
- 该网络必须积极招募来自代表性不足的地区 (非洲,亚洲,澳大利亚/新西兰,南美,东欧) 的合作伙伴,并扩大其年龄范围.
- 这些有针对性的招聘工作将增强多样性并推动GRAPPA的研究目标.
- 这些研究结果在GRAPPA2024年会上发表,以指导未来的举措.
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