设计应对危机的支持仪表板来保护弱势群体:一项定性研究
Jan Carlo Schmid1, Sophie Anne Inès Klopfenstein1, Lina Katharina Mosch2,3,4
1Core Facility Digital Medicine and Interoperability , Berlin Institute of Health at Charité, Germany.
Studies in health technology and informatics
|September 3, 2025
概括
发展包容性的健康仪表板对于危机期间的弱势群体至关重要. 专家的意见指导创建以用户为中心的数字工具, 以减少健康不平等并改善危机应对.
科学领域:
- 公共卫生
- 医疗信息学
- 数字健康
背景情况:
- COVID-19 疫情凸显了健康差异以及公平应对危机战略的必要性.
- 现有的健康仪表板往往忽视了弱势群体的需求.
- 需要有针对性的数字解决方案来支持卫生危机中的弱势群体.
研究的目的:
- 评估专家关于为弱势群体设计应对危机的健康仪表板的观点.
- 确定一个包容性的健康仪表板的主要特征和内容.
- 为满足不同用户群体需求的数字工具开发提供信息,包括那些数字素养有限的用户群体.
主要方法:
- 一个前性的,参与性的研讨会,涉及来自COLLPAN联盟的20名多学科研究人员.
- 使用6-3-5方法来生成数据.
- 使用MAXQDA对转录的半结构文本响应进行了主题分析.
主要成果:
- 拟议的仪表板针对不同用户 (患者,专业人士,研究人员,决策者),重点是数字素养.
- 核心功能包括数据可视化,管理,分析,网络和人工智能辅助功能,具有多语言和基于应用程序的功能.
- 内容将涵盖资源的可用性,流行病学数据,疾病负担,风险概况,使用健康,行政,社会经济和人口数据来源.
结论:
- 对于服务于弱势群体的健康仪表板来说, 包容性和以用户为中心的设计至关重要.
- 对于有效的数字健康解决方案来说,早期的利益相关者参与和坚实的技术基础至关重要.
- 精心设计的数字工具可以减轻健康不平等, 而不是加剧不平等.
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