社会倾听作为了解营养相关信息需求的工具:炎症性肠道疾病的案例研究
Chiara Miglioretto1, Eleanor J Beck1,2, Kelly Lambert1
1School of Medical, Indigenous and Health Sciences, University of Wollongong, Wollongong, New South Wales, Australia.
概括
患有炎症性肠病 (IBD) 的人因医疗指导的缺陷而在网上寻求饮食信息和支持. 社交媒体上的评论显示, 人们非常需要实用建议和联系来管理慢性疾病.
科学领域:
- 胃肠病学
- 营养科学
- 数字健康
背景情况:
- 炎症性肠病 (IBD) 是一种慢性疾病,需要个性化,整体的治疗.
- 现有的饮食指南侧重于缓解诱导,而不是维持,留下持续治疗症状的空白.
- 由于持续的症状和缺乏医疗保健提供者的指导,患者经常感到丧.
研究的目的:
- 量化和探索IBD患者的营养相关信息需求和经验.
- 分析在线社交媒体讨论, 了解患者对饮食和自我管理的看法.
- 填补IBD患者的饮食信息差距.
主要方法:
- 分析一些Facebook群体的评论.
- 定量和定性内容分析,包括诱导性主题分析.
- 使用聊天生成预训练变压器进行辅助内容分析,与手动分析达成75%的一致性.
主要成果:
- 在分析的11945条评论中,37.5%与饮食有关.
- 确定了五个关键主题:渴望得到支持,寻求信息,接受非专家建议,将食物视为药物,并将IBD视为限制因素.
- 在线社区提供有价值的信息和联系.
结论:
- 像Facebook群体这样的社交媒体平台弥补了人们对多学科IBD护理的缺陷.
- 营养学家应提供切实可行的建议, 解决患者的障碍.
- 强调易于获得,同情和知识博的IBD患者护理的重要性.
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