一个合作网络, 改善巴西的儿科瘤治疗
Luiz Fernando Lopes1,2, Patrícia Loggetto2, André de Oliveira Junior1
1Hospital De Câncer Infantojuvenil De Barretos, Barretos, São Paulo, Brazil.
Pediatric blood & cancer
|September 4, 2025
概括
通过合作, AMARTE联盟改善了巴西儿童癌症的治疗. 尽管在可持续参与和治理方面存在挑战,
科学领域:
- 儿童瘤学
- 医疗公平
- 合作网络
背景情况:
- 巴西在儿童癌症治疗和存活率方面存在显著的区域差异.
- 2014年由6家医院启动, 到2024年AMARTE联盟将扩大到31家机构.
- 该联盟旨在提高全国范围内的儿科瘤护理质量.
研究的目的:
- 在巴西建立儿童瘤护理合作网络.
- 解决不同地区诊断和治疗方面的不平等问题.
- 促进儿童癌症护理方面的创新,研究和专业培训.
主要方法:
- AMARTE联盟在四个支柱上运作:均等诊断,标准化治疗,进行生存研究和促进科学发展.
- 基础设施和人力资源由Fundação Pio XII和圣犹大儿童研究医院提供支持.
- 半年一次的评估 (SCORE) 通过定义的指标来监测会员的进步和参与.
主要成果:
- 三份参与报告显示有进展,17家医院提高了Score.
- 主要成果包括共享数据注册,标准化协议,定期的科学会议和专门的筹款小组.
- 这种联盟促进了创新和学习的协作环境.
结论:
- AMARTE联盟展示了合作在儿童瘤学的发展中的关键作用.
- 确保持续的专业参与和驾多样化的治理结构仍然存在挑战.
- 制定结果指标对于评估联盟的长期影响至关重要.
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