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复杂的CHD在美国的经济负担

Diane M Pickles¹, Kirstie Keller¹

¹Additional Ventures, Palo Alto, CA, USA.

Cardiology in the young

|September 5, 2025

概括

复杂的先天性心脏缺陷给家庭和医疗系统带来了巨大的经济负担,远高于常见的心脏病. 增加研究资金对于改善患者的结果至关重要.

科学领域:

心血管医学
健康经济学
儿童心脏病学

背景情况:

美国大约1%的新生儿患有先天性心脏缺陷 (CHD),复杂的病例需要终身密集医疗护理.
尽管复杂的CHD严重,但其经济影响仍未得到量化,导致研究资金和投资不足.
现有的数据缺口阻碍了复杂的CHD对家庭和医疗保健系统造成的重大财务负担.

研究的目的:

量化六个复杂的CHD的财务和经济影响.
将复杂心脏病与冠心病和充血性心力衰竭的直接,间接和死亡成本进行比较.
突出复杂的CHD的不成比例的经济负担,尽管它们的流行率较低.

主要方法:

确定和量化与六种复杂的CHD相关的直接,间接和死亡成本.
这些费用与冠心病和充血性心力衰竭的费用进行比较分析.
评估对家庭的经济影响,包括自付费用和劳动力参与.

主要成果:

复杂性心脏病每年每患者的直接和间接成本是冠心病的四倍,是充血性心力衰竭的八倍.
复杂性心脏病的平均直接和间接成本为每名患者210万美元,
家庭承受着巨大的经济压力,前五年31%的终身费用和平均19万美元的自付费用;许多照顾者减少工作时间或离开劳动力.
综合性心血管疾病的年度国家成本估计为740亿美元, 终身经济影响超过3.35万亿美元.

结论:

复杂的慢性病对个人,家庭和医疗保健系统来说是一个巨大的经济负担.
这种经济损失的系统性不充分认识导致对研究的投资持续不足,影响了患者的结果.
涉及研究机构,政策制定者和临床系统的跨学科方法对于解决复杂的CHD的经济和人力成本至关重要.

关键词:

复杂的CHD 直接成本经济负担间接成本死亡成本一个心室

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