集中社区声音:评估儿童息护理研究的利益相关者参与
Camille R Murray1, Elizabeth Reisinger Walker2, Maura Savage3
1UNC Gillings School of Global Public Health, Department of Health Policy and Management, Chapel Hill, NC.
Journal of pain and symptom management
|September 5, 2025
概括
基于社区的参与性研究 (CBPR) 有意义地让利益相关者咨询委员会 (SAB) 参与了一项关于儿童重症护理中的种族主义的研究. 他们的持续参与,建立在信任和共同的目的,突出CBPR
科学领域:
- 儿童缓和护理
- 医疗公平研究
- 基于社区的参与性研究 (CBPR)
背景情况:
- 严重疾病的种族差异影响了黑人和美洲原住民的孩子.
- 系统上的不平等加剧了这些健康差异.
- 研究必须以少数群体为中心,
研究的目的:
- 评估一个利益相关者咨询委员会 (SAB) 的参与,以指导儿童重症护理中的种族主义研究.
- 探索SAB成员对参与和影响的看法.
- 评估CBPR与息护理价值的一致性.
主要方法:
- 混合方法评估 (过程和结果).
- 通过观察,Zoom聊天日志和会议后调查收集的数据.
- 用于从多个数据源中合成主题的三角化.
主要成果:
- 三个参与主题出现了:积极参与,人际联系 (同情心,幽默) 和共同的目标.
- 强大的人际关系和有目标的感觉推动了持续的参与.
- 对建议的反应建立了成员的信任和能力.
结论:
- 培养有意义的贡献和处理种族主义经验的情感支持.
- CBPR的原则与息护理的价值观一致.
- 在社区参与的儿科严重疾病研究中,反复评估是有价值的.
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