炎症性肠病患者的疼痛经验:一种定性研究
Charlotte Beames1, Afra Azadi1, Amanda C de C Williams2
1Research Department of Clinical, Educational and Health Psychology, University College London, London, UK.
BMJ open gastroenterology
|September 5, 2025
概括
患有炎症性肠病 (IBD) 的人会出现严重的疼痛,影响日常生活. 一个新的心理模型强调了情绪上的痛苦和医疗方面的挑战,与肌肉骨疼痛不同.
科学领域:
- 胃肠病学
- 心理学
- 治疗疼痛
背景情况:
- 炎症性肠道疾病 (IBD) 经常引起疼痛,影响患者的生活质量.
- 目前的心理疼痛干预通常是根据肌肉骨模型进行的, 缺乏针对IBD的具体验证.
研究的目的:
- 开发IBD患者所经历的疼痛的心理模型.
- 了解IBD相关疼痛的独特心理方面.
主要方法:
- 使用网格编制方法进行在线采访的定性研究
- 对30名患有IBD疼痛的参与者 (15名男性,15名女性) 的主题和子主题进行分析.
- 参与者报告平均疼痛为5/10,活动干扰为6/10.
主要成果:
- 五个相互关联的主题出现:情绪影响,疼痛挑战,与症状相关的限制,医疗保健系统的缺陷以及公众对IBD的误解.
- 担心疼痛的意义是很常见的,但在肌肉骨疼痛中所见的身体完整性和活动回避的恐惧并不存在.
- 在心理上不同于肌肉骨疼痛.
结论:
- 对IBD疼痛的心理经验需要进一步研究.
- 调查结果表明需要针对IBD疼痛进行量身定制的,有心理依据的干预措施.
- 未来的干预措施应考虑患者提供者伙伴关系和公共教育.
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