评估癌症患者对治疗错误信息的暴露
Naomi D Parker1, Skyler B Johnson2, Andy J King3
1Department of Health Outcomes and Biomedical Informatics, College of Medicine, University of Florida, Gainesville, FL, USA. naomiparker@ufl.edu.
概括
大多数癌症患者 (93%) 遇到癌症治疗错误信息 (CTM), 消极接触比积极寻找更常见,强调需要更好的患者教育和沟通策略.
科学领域:
- 癌症学
- 关于健康的信息
- 患者教育
背景情况:
- 癌症治疗错误信息对患者的护理和治疗结果构成重大威胁.
- 评估患者对CTM的暴露对于制定有效干预措施至关重要.
- 需要一个经过验证的工具来准确测量CTM暴露.
研究的目的:
- 通过癌症治疗错误信息 (ECTM) 调查评估患者暴露于癌症治疗错误信息 (CTM) 的情况.
- 通过包括未经证实的治疗方法,放弃传统护理,并接受神话.
- 评估ECTM调查在捕获CTM暴露尺寸方面的有用性.
主要方法:
- 一项调查对110名癌症患者进行了调查.
- 参与者确定了他们遇到的非基于证据的癌症治疗方法.
- 该调查评估了CTM类型,来源和暴露模式 (搜索与扫描).
主要成果:
- 观察到CTM暴露率很高,93%的人报告暴露于至少一种形式.
- 79%的受访者遇到了国家癌症研究所发现的癌症神话或误解.
- 主要来自朋友和家人的被动接触比积极寻找信息更为常见.
结论:
- 对于评估CTM暴露的多个方面来说,ECTM调查是一个有用的工具.
- 调查结果强调了CTM的普及程度和社交网络作为来源的重要性.
- 未来的研究应该验证ECTM调查,并探索患者与瘤学家之间的CTM沟通.
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