追踪纤维瘤:对社交媒体叙述的分析
Kelsey Musselman1, Sydney Olson1, Marie-Claire Leaf1
1Department of Gynecology and Obstetrics, Johns Hopkins Hospital, Baltimore, MD, USA.
JSLS : Journal of the Society of Laparoendoscopic Surgeons
|September 8, 2025
概括
社交媒体提供了大量的子宫纤维瘤信息,但质量往往很差,对微创手术的细节有限. 患者需要准确的,基于证据的在线资源来获得更好的护理.
科学领域:
- 生殖健康 生殖健康
- 医疗信息学医学信息学
- 患者教育 患者教育
背景情况:
- 子宫纤维瘤是一种常见的妇科疾病.
- 患者越来越多地在社交媒体平台上寻找健康信息.
- 在线纤维瘤内容显著增加,需要对其质量和主题进行分析.
研究的目的:
- 分析社交媒体上的子宫纤维瘤内容的特征和质量.
- 了解患者遇到的关于子宫纤维瘤的信息景观.
- 识别在线信息上的差距,特别是关于治疗选择的差距.
主要方法:
- 在Facebook,Instagram和TikTok上对300个最受欢迎的社交媒体帖子 (#纤维瘤) 的分析 (2019年10月至2024年6月).
- 使用DISCERN和患者教育材料评估工具 (PEMAT) 评估后人口统计,内容主题和信息质量.
主要成果:
- TikTok显示了纤维素瘤内容的最高参与度.
- 内容主题包括促销,饮食/补充剂,意识和教育,替代疗法经常被提及而不是手术.
- 信息质量通常很差 (平均DISCERN 28.4),尽管可理解性很高 (平均PEMAT 94.9%).
- 至少侵入性的外科选择不足 (6.7%).
结论:
- 社交媒体平台拥有大量的子宫纤维瘤内容,主要是低质量的内容.
- 在网上讨论中,微创手术程序的代表性显著缺乏.
- 加强努力至关重要,以传播准确的,基于证据的信息,并提高患者对纤维瘤治疗的理解.
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