探索澳大利亚心力衰竭成年人的自我护理经验:一项定性研究
Rebecca Nourse1,2, Lars Kayser2, Ralph Maddison1
1School of Exercise & Nutrition Sciences, Faculty of Health, Deakin University, Burwood, VIC, Australia.
Qualitative health research
|September 8, 2025
概括
患有心力衰竭的成年人通过超出临床期望的自我护理实践来管理他们的病情. 了解这些生活经验对于有效的心力衰竭管理至关重要.
科学领域:
- 心脏病学 心脏病学
- 质量健康研究 质量健康研究
- 患者体验 患者体验
背景情况:
- 心力衰竭 (HF) 是一种慢性,渐进的疾病,严重影响患者的生活质量和日常功能.
- 现有的HF自我护理指南可能无法完全捕捉患者生活经验的复杂性.
- 生活在社区中,患有HF的成年人面临着在日常生活中管理他们的病情时面临的独特挑战.
研究的目的:
- 探索和理解澳大利亚社区居住的心力衰竭成年人的自我护理经验.
- 为了捕捉患者的个人自我护理账户,无论是否遵守临床定义.
- 确定自我护理经验对心力衰竭患者的背景和影响.
主要方法:
- 采用了定性研究方法,利用深度访谈.
- 通过社区心脏支持组织和社交媒体招募了9名心力衰竭的参与者.
- 数据使用反射主题分析从批判现实主义的角度分析.
主要成果:
- 出现了三个关键主题:平衡高频的可见性/不可见性,在误解中发展理解,以及导航关系.
- 参与者的自我照顾包括管理社会身份,家庭动态和日常生活整合.
- 自我护理实践往往不同于传统的临床期望,突出了当前管理中的差距.
结论:
- 当前的心力衰竭管理策略可能会忽视患者日常生活和自我护理的关键方面.
- 有效的干预措施应解决患者更广泛的问题,包括社会身份和关系,而不仅仅是临床结果.
- 需要采取更全面的方法来有效地支持患有心力衰竭的人.
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