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不仅仅是疼痛:在患有状细胞疾病的儿童中,言语,语言,神经认知和听力问题
Candice J Adams-Mitchell1, Charles Ellis2
1Department of Speech, Language and Hearing Sciences, University of Florida, Gainesville, FL, United States.
Journal of the National Medical Association
|September 9, 2025
概括
患有状细胞疾病 (SCD) 的儿童经常出现言语,语言和听力问题. 语音语言病理学家和听力学家的早期发育和定期重新评估对于有效的SCD管理至关重要.
科学领域:
- 儿科血液学 儿科血液学
- 神经发育障碍 神经发育障碍
- 通信科学 通信科学
背景情况:
- 状细胞病 (SCD) 是一种普遍的遗传性血液疾病,主要影响非裔美国人.
- 虽然慢性疼痛是SCD的标志性特征,但发育问题在言语,语言,神经认知和听力经常被忽视.
- 这些被忽视的挑战会对孩子的整体发展和生活质量产生重大影响.
研究的目的:
- 探索SCD儿童的沟通相关挑战.
- 突出语音语言病理学家 (SLPs) 和听力学家 (AUDs) 在SCD护理中的作用.
- 倡导将沟通和听力评估纳入标准的SCD管理.
主要方法:
- 文献综述和关于SCD和发展结果的当前研究的综合.
- 分析SLP和AUD与SCD相关赤字有关的实践范围.
- 制定全面评估和管理策略的建议.
主要成果:
- 患有SCD的儿童通常表现出言语,语言,神经认知和听力困难.
- 这些挑战可以在各种发育阶段表现出来,从童年到青春期.
- 当前的SCD管理模式往往不能充分解决这些与通信相关的需求.
结论:
- 语音,语言和听力障碍是SCD儿童的重要并发症.
- 临床医生和AUD的早期和持续的发育评估对于全面的SCD护理至关重要.
- 整合这些专业评估可以减轻长期影响并改善患者的治疗结果.
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