超越屏幕:探索患有牛皮的个体的数字健康体验 - - 一个定性面试研究
Mert Ege Erbas1, Stefanie Ziehfreund1, Tilo Biedermann1
1Department of Dermatology and Allergy, TUM School of Medicine and Health, Technical University of Munich, Biedersteiner Str. 29, 80802, Munich, Germany.
BMC public health
|September 9, 2025
概括
数字媒体为牛皮患者提供了诸如改善幸福感和获得治疗等好处,但也带来了诸如错误信息等挑战. 在线医生和患者之间的合作是改善牛皮护理的关键.
科学领域:
- 皮肤病学和数字健康
- 患者与慢性疾病管理的经验.
- 在医疗保健领域进行定性研究.
背景情况:
- 牛皮是一种慢性炎症性皮肤疾病,具有显著的身体和心理负担.
- 数字媒体的兴起为患者信息获取和健康管理带来了机会和挑战.
- 在线健康资源中普遍存在错误信息和低质量的内容,影响着牛皮患者.
研究的目的:
- 探索患有牛皮的个体关于他们使用数字媒体获取疾病相关信息的经验.
- 在牛皮管理的背景下,识别与数字媒体相关的感知优势和困难.
- 了解数字媒体如何影响银病护理中的医生患者关系,并收集改善建议.
主要方法:
- 采用半结构面试和开放式问题的定性研究.
- 在2020年8月至2022年1月期间,在德国通过视频通话采访了8名患有牛皮的参与者.
- 数据分析使用了梅灵的定性内容分析,并对类别排名进行了定量评估.
主要成果:
- 参与者强调了数字媒体的优势,包括对福祉的积极影响和获得替代疗法的机会.
- 发现的主要困难是在线内容的质量缺陷和普遍的商业利益.
- 在医生与患者的沟通中,数字媒体很少被讨论,当它被讨论时,医生的反应往往是负面的;参与者希望更可靠的在线资源和医生与患者的合作.
结论:
- 数字媒体为牛皮管理带来了重大机遇和挑战,需要患者谨慎导航.
- 医生在引导患者进入可靠的在线健康平台方面发挥着至关重要的作用.
- 建议加强医疗保健提供者与患者在数字平台上的合作,并将医生与患者关系适应数字时代,以改善患者护理.
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