探索拉丁裔痴呆症照顾者的未满足需求:一种定性研究
Maria M Quiñones-Cordero1,2, Sally Norton2, Catherine Rivas3
1Elaine C. Hubbard Center for Nursing Research on Aging, The School of Nursing, University of Rochester Medical Center, United States.
The Gerontologist
|September 10, 2025
概括
拉丁裔照顾阿尔茨海默病和相关痴呆症 (ADRD) 患者的护理人员经历了未满足的需求,包括社会联系,护理资源,了解痴呆症和文化一致的医疗保健. 解决这些问题对于照顾者福祉至关重要.
科学领域:
- 老年学是指老年学的学科.
- 公共卫生 公共卫生
- 社会学 社会学 社会学
背景情况:
- 超过12%的拉丁裔老年人患有阿尔茨海默病和相关痴呆症 (ADRD),通常是早期发病和更严重的症状.
- 拉丁裔护理人员因ADRD患病率和严重程度的差异而面临重大压力和负担.
- 系统性不平等限制了拉丁裔护理人员获得高质量的痴呆症护理的机会,对他们的健康和福祉产生了负面影响.
研究的目的:
- 调查拉丁裔痴呆症患者的照顾者所面临的未满足需求和挑战.
- 了解这个人口群体在提供护理方面遇到的具体困难.
主要方法:
- 一项定性描述性研究涉及23名拉丁裔照顾者,主要是照顾患有ADRD的父母.
- 通过在线平台,社区外展和提供商推进行国家和地方招聘.
- 以英语或西班牙语进行的深度半结构化采访,随后进行主题内容分析.
主要成果:
- 关于护理需求,出现了四个关键主题:社会联系,获得护理资源,了解痴呆症和未来规划,以及需要 empathic,文化一致的医疗保健.
- 护理人员表示需要更好的社会支持网络.
- 导航痴呆症护理和资源提出了重大挑战.
结论:
- 该研究确定了拉丁裔ADRD护理人员的关键未满足需求,突出了他们的护理经验的复杂性.
- 调查结果强调了开发有针对性的,文化敏感的干预措施的必要性,以提高拉丁裔护理人员的福祉.
- 未来的研究应该专注于为这一群体创建文化调整的支持系统.
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