在中国癌症患者中寻求健康信息的经验:一项定性研究
Yanjun Wu1, Shenglu Li1, Yan Zhou1
1Department of Cancer Center, The Second Affiliated Hospital of Chongqing Medical University, Chongqing, China.
Frontiers in public health
|September 11, 2025
概括
中国的癌症患者寻求情感上的支持和清晰的,个性化的信息,受文化的影响. 医疗保健提供者应该定制策略并指导在线搜索以改善福祉.
科学领域:
- 在瘤学瘤学.
- 健康心理学 心理健康心理学
- 卫生沟通健康沟通
背景情况:
- 提供信息对于癌症患者的福祉至关重要.
- 关于中国癌症患者信息需求的研究有限.
- 文化因素显著影响健康信息的搜索.
研究的目的:
- 为了探索中国癌症患者的健康信息搜索体验.
- 确定他们特定的信息需求和偏好.
- 了解文化影响对信息搜索的作用.
主要方法:
- 使用半结构化的深度访谈进行定性研究.
- 在中国的一个瘤病房采访了17名癌症患者.
- 转录和翻译采访的传统内容分析.
主要成果:
- 关键主题:被动信息接收,寻求情感支持,信息的不同角色 (放心/麻烦) 和首选的信息传递 (简单的语言,个性化,医生信任).
- 情感上的支持,包括积极的故事和鼓励,至关重要.
- 家庭参与信息搜索增强了情感支持.
结论:
- 文化背景与中国癌症患者的信息需求是不可分割的.
- 医疗保健专业人员应鼓励患者表达对量身定制策略的需求.
- 个性化,简单的语言信息,加上在线资源的指导,是必不可少的.
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