脸书作为同行支持的舞台?-知识交流和关于中风的规范性疾病叙述
Lill Hultman1,2, Ulla-Karin Schön3, Fredrik Sandman1
1Division of Family Medicine and Primary Care, Department of Neurobiology, Care Science and Society (NVS), Karolinska Institutet, Huddinge, Sweden.
Digital health
|September 12, 2025
概括
在线社区中的中风幸存者在身份转变中进行导航,采取各种角色,如幸存者或导师. 这凸显了中风后恢复和适应的多样性和不断变化的性质.
科学领域:
- 社会科学 社会科学 社会科学
- 健康科学 卫生科学 卫生科学
- 心理学 心理学 心理学
背景情况:
- 脑卒中显著影响生活过程,导致全球残疾.
- 同行支持社区为中风幸存者提供了一个平台,分享经验并帮助恢复.
研究的目的:
- 检查在线中风幸存者社区中的身份构建.
- 分析叙事如何塑造理解,并将身份重建为主体位置.
主要方法:
- 瑞典在线同行支持社区的话语分析.
- 从397个帖子和评论中收集的数据使用结构化协议.
- 分析以拉克劳和穆夫的演讲框架为指导.
主要成果:
- 确定了五个主体位置:幸存者,寻路者,导师,斗争者,局外人.
- 脑卒中后的身份是多元的和流动的,成员们转换角色.
- 认同斗争涉及未来的方向和谈判期望.
结论:
- 脑卒中恢复是不统一的,强调在适应过程中的身份工作.
- 不同的学科位置需要灵活,以患者为中心的服务.
- 支持应适应各种叙述,包括长期残疾和创伤.
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