儿科家庭息护理和临终关怀:描述和比较人口
Ben Reader1, Sibelle Aurelie Yemele Kitio2, Steven M Smith3
1Division of Homecare (B.R., S.M.S.), Nationwide Children's Hospital, Columbus, Ohio, USA.
Journal of pain and symptom management
|September 12, 2025
概括
家庭息护理 (HBPC) 和临终关怀计划为寿命缩短的儿童提供服务. 临终关怀患者比HBPC患者年轻,癌症诊断更多,死亡率更高.
科学领域:
- 儿科缓和护理 儿科缓和护理
- 医疗保健服务研究 医疗保健服务研究
背景情况:
- 家庭息护理 (HBPC) 和临终关怀计划支持患有复杂,缩短寿命的儿童.
- 关于儿科HBPC与宿舍患者的特征和护理轨迹的比较数据有限.
研究的目的:
- 为了比较接受HBPC和/或住院治疗的儿科患者的特征.
- 确定这些儿科群体之间的差异和相似之处.
主要方法:
- 在2019-2022年期间接受HBPC和/或住院治疗的113名儿童 (出生-21岁) 的回顾性队列研究.
- 从电子健康记录中提取的数据;统计分析包括描述性统计和比较测试.
- 亚组分析排除了1岁以下的儿童.
主要成果:
- 临终关怀患者年轻 (中位数为2岁与7岁),更有可能患有瘤诊断,死亡率更高 (69.6%与22.1%).
- 患有HBPC的患者入院次数更多,住院时间更长,门诊次数更多.
- 在1岁以上的儿童中,临终关怀患者更有可能获得"允许自然死亡"的命令和代码状态更改.
结论:
- 儿科HBPC和临终关怀患者在年龄,诊断和医疗保健利用方面存在显著差异.
- 这些发现突出了儿科息护理机构中不同的个人资料和需求.
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