了解中国不孕症患者与健康相关的生活质量:一种定性研究
Zhao Shi1,2,3,4, Yu Zheng5, Xiaohong Zhu1,2,3,4
1Department of Social Medicine and Health Management, School of Public Health, Cheeloo College of Medicine, Shandong University, Jinan, China.
概括
本研究探讨了不孕症患者的经验,以制定与健康相关的生活质量 (HRQoL) 框架. 这些发现旨在改善以患者为中心的护理,并为创建新的HRQoL评估工具提供信息.
科学领域:
- 生殖健康 生殖健康
- 定性研究是指质量研究.
- 与健康相关的生活质量 (HRQoL) 研究研究
背景情况:
- 不孕症显著影响全球与健康相关的生活质量 (HRQoL).
- 社会背景因素影响生育态度和HRQoL.
- 了解患者的观点对于有效的护理至关重要.
研究的目的:
- 从患者和专业的角度了解生育问题.
- 为不孕症患者的HRQoL开发一个全面的概念框架.
- 为文化敏感,以患者为中心的不孕不育护理提供信息.
主要方法:
- 使用半结构面试进行的定性研究,对中国四个生殖中心的93名参与者进行了半结构面试.
- 基于理论的数据分析方法.
- 来自在线社区的电子患者日记被用作补充数据.
主要成果:
- 确定了2580个初始概念,再细化成71个初始类别和18个子类别 (例如症状,情绪,生殖应激).
- 出现了四个主要类别:身体健康,心理健康,社会健康和主观福祉.
- 为不孕症患者开发了一种特定疾病的HRQoL概念框架.
结论:
- 为东方不孕症患者建立了一个文化敏感的HRQoL框架.
- 该框架针对性别特异性的经验,并支持量身定制的干预措施.
- 这些发现将有助于开发一种新的HRQoL仪器,用于不孕症患者.
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