口腔癌患者应对口腔障碍的自我倡导经验:一种定性研究
Yuanyuan Li1,2, Lin Cheng1,3, Yuxi Xie1
1School of Public Health and Nursing, Hangzhou Normal University, Hangzhou, China.
Asia-Pacific journal of oncology nursing
|September 15, 2025
概括
口腔癌患者因认知,沟通和资源障碍而扎于失消. 这些挑战显著影响了他们的自我宣传和整体应对机制.
科学领域:
- 在瘤学瘤学.
- 患者体验 患者体验
- 健康心理学 心理健康心理学
背景情况:
- 消化不良是口腔癌及其治疗的常见和使人虚弱的副作用.
- 有效的应对策略和自我倡导对于治疗口腔癌患者的消化障碍至关重要.
- 有限的研究存在于口腔癌患者通过自我倡导导导航口腔障碍的经验.
研究的目的:
- 探索口腔癌患者在应对失消症方面的经验.
- 了解自我倡导在治疗这种患者群体的消化障碍症中的作用.
主要方法:
- 采用了一种描述性的定性研究设计.
- 对21名口腔癌患者进行了面对面,深入的半结构面试.
- 数据分析使用了指向内容分析方法,以自我宣传框架为指导.
主要成果:
- 患者报告认知挑战,包括误解和失去控制.
- 发现了与医疗保健专业人员沟通的障碍,以及对互联网信息的依赖.
- 家庭和同伴支持的复杂性,以及经济排斥,是重要的发现.
结论:
- 口腔癌患者在治疗口腔障碍时遇到多方面的障碍,包括认知,医疗和资源相关的问题.
- 这些障碍集体影响患者的自我倡导和他们有效应对能力.
- 干预措施应解决这些相互关联的因素,以改善患者的治疗结果.
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