"美好的一天只是能够呼吸":将COPD研究与患者需求对齐,是一项定性研究
Laurel O'Connor1, Julia Ferranto1, Anuska Ganesh Harne1
1Program in Digital Medicine, Department of Medicine, University of Massachusetts Chan Medical School, Worcester, Massachusetts, United States of America.
患有慢性阻塞性肺病 (COPD) 的患者希望临床试验重点关注日常生活的影响,并减少参与负担. 让患者参与研究设计可以提高COPD干预的有效性.
科学领域:
- 肺部医学 肺部医学
- 临床研究方法论 临床研究方法论
- 患者为中心的结果.
背景情况:
- 慢性阻塞性肺病 (COPD) 是一种普遍的疾病,经过了广泛的临床研究.
- 关于患者和护理人员对COPD临床试验设计,结果和干预可接受性的看法的理解有限.
研究的目的:
- 探索患者和护理人员对COPD专注临床研究的观点和优先事项.
主要方法:
- 半结构面试以理论可接受性框架 (TFA) 为指导.
- 使用感应主题方法对转录的采访进行定性分析.
主要成果:
- 患者优先考虑影响日常生活的结果措施,包括心理健康和身体功能.
- 可操作的研究数据和与提供者分享的健康见解至关重要.
- 研究参与度受到干预负担,复杂性和相关性的影响;更简单的设计更受青.
- 患者希望更多地参与研究设计过程.
结论:
- 将COPD研究与患者优先事项相协调,涉及到有意义的结果,减轻负担和持续的参与.
- 以患者为中心的方法提高了COPD干预措施的招募,坚持和现实影响.
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