在社交媒体上探索疼痛:关于慢性疼痛疾病的感知和讨论的观察性研究
Teresa Valades1,2,3, Cesar I Fernandez-Lazaro4,5, Francisco Lara-Abelenda1,6
1Department of Medicine and Medical Specialties, Faculty of Medicine and Health Sciences, University of Alcala, C/ 19, Av de Madrid, Km 33,600, Alcalá de Henares, Madrid, 28871, Spain, 34 916 262626.
JMIR infodemiology
|September 16, 2025
概括
社交媒体分析显示,关于纤维肌痛和多发性硬化症等慢性疼痛疾病的讨论集中在治疗和理解上. 医疗保健专业人员是关键参与者,强调需要通过像X这样的平台提供更好的公共教育和支持.
科学领域:
- 传染病学和公共卫生监测
- 医疗保健中的社交媒体分析.
- 数字健康沟通数字健康沟通
背景情况:
- 慢性疼痛影响全球30.3%,导致残疾和痛苦.
- 纤维肌痛,头痛,残肢,神经病变和多发性硬化症是关键的慢性疼痛疾病.
- 像X这样的社交媒体平台对于分析健康感知和体验是有价值的.
研究的目的:
- 分析特定慢性疼痛疾病的X帖子.
- 描述用户配置文件,并确定普遍的主题.
- 评估公众的看法,治疗疗效和非医学问题.
主要方法:
- 在英语和西班牙语中收集了72,874条推特 (2018-2022年).
- 手动审查2500条推文,并使用BERTweet模型进行自动分类.
- 分析了用户类型,疾病来源和医疗/非医疗内容.
主要成果:
- 55,451条推特 (76.1%) 是可以分类的.
- 医疗保健专业人员和机构是最活跃的用户.
- 药理病因是主要的;在神经病变,残和多发性硬化症的治疗疗效较高.
结论:
- X对于传播慢性疼痛信息至关重要.
- 讨论强调了治疗方法和加强公众教育的必要性.
- 社交媒体可以纠正误解并有效支持患者.
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