父母的观点:自闭症女儿的月经和月经卫生管理
Glynnis Jones1, Samantha Helsley2, Rebecah Fox3
1Glynnis Jones, OTD, OTR/L, is Assistant Professor, Occupational Therapy, Moravian University, Bethlehem, PA; jonesg02@moravian.edu.
概括
自闭症女儿的父母面临的挑战是管理月经和月经卫生. 职业治疗可以通过理解这些生活经验来帮助改善对自闭症患者及其照顾者的支持.
科学领域:
- 这项研究属于发育障碍和职业治疗领域.
- 它特别解决了自闭症谱系障碍 (ASD),月经和日常生活活动的交叉点.
背景情况:
- 月经和月经卫生管理 (MHM) 是日常生活的关键活动.
- 这些做法往往对患有自闭症谱系障碍 (ASD) 的人来说具有挑战性.
- 父母的见解对于理解和应对这些挑战是有价值的.
研究的目的:
- 探索自闭症女儿的父母关于月经和MHM的观点和生活经验.
- 从父母的角度来看,识别挑战和有效的策略.
主要方法:
- 采用了定性,现象学研究设计.
- 与8名自闭症女儿的家长 (7名母亲,1名父亲) 进行了虚拟半结构面试.
- 诱导性主题分析用于分析采访成绩单.
主要成果:
- 父母报告说,对于自闭症患者的女性健康,医疗专业知识不足.
- 主题包括强烈的感官体验,自闭症患者的月经意识有限,以及父母的依赖.
- 还确定了父母的感受,对月经产品的偏好,以及成功的管理策略.
结论:
- 家长们在通过月经和MHM来支持自闭症女儿时遇到很大的困难.
- 职业治疗从业者可以通过理解这些父母的经历来加强他们的支持.
- 这种知识可以为职业治疗实践提供信息,以改善自闭症患者及其护理人员在职业治疗中的参与和表现.
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