行动中的机构:让患者参与到研究中来
Jillianne Code1, Heather Lannon1, Aimee Lutrin1
1Faculty of Education, University of British Columbia, Canada.
Patient education and counseling
|September 19, 2025
概括
心血管研究中的患者合作伙伴通过教育和支持获得代理权,从而实现更有意义的参与. 培养患者能力是有影响力的,公平的健康研究伙伴关系的关键.
科学领域:
- 心血管疾病的研究研究.
- 患者参与健康研究的参与.
- 卫生公平性健康公平性
背景情况:
- 患者的选择权对于有意义地参与研究至关重要.
- 心血管疾病 (CVD) 患者对参与研究的看法至关重要.
- 了解患者如何实施代理,可以为更好的研究实践提供信息.
研究的目的:
- 探索心血管疾病患者在研究伙伴关系中如何感知和实施代理.
- 确定影响患者参与研究决策,沟通和参与的因素.
- 评估大师班课程对心血管研究中的患者主动性的影响.
主要方法:
- 使用半结构面试与11名患者合作伙伴进行的定性研究.
- 在患者研究机构 (PAIR) 框架的指导下,对采访成绩单进行主题分析.
- 参与者参加了一个旨在增强研究参与能力的全国大师班.
主要成果:
- 患者报告增加了信心,研究知识和意向.
- 参与者浏览了权力动态,解决了代币主义,并倡导包容性.
- 关键发现包括自主学习,赋权,心理安全,信任和透明的沟通.
结论:
- 患者主动性对于有意义的参与至关重要,需要刻意培养.
- 教育计划可以加强患者的代理权,使有影响力的研究贡献成为可能.
- 投资于患者能力和公平的环境将参与超越符号主义,转向真正的伙伴关系.
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