公民科学作为一种方法,可以让代表性不足的社区参与卫生研究的共同发展
Codie A Primeau1, Alison M Hoens1, Stephanie Therrien2
1Arthritis Research Canada, Vancouver, British Columbia, Canada; Department of Physical Therapy, University of British Columbia, Vancouver, British Columbia, Canada.
Journal of clinical epidemiology
|September 19, 2025
概括
公民科学通过吸引各种社区,特别是代表性不足的群体来增强健康研究. 这种方法共同开发研究问题,确保相关性,并通过包容性,透明的合作促进健康公平.
科学领域:
- 公共卫生研究 公共卫生研究
- 社区参与方法 社区参与方法
- 卫生公平研究 卫生公平研究
背景情况:
- 在健康研究中与代表性不足的社区进行有意义的参与至关重要,但具有挑战性,往往会使健康不平等继续存在.
- 公民科学提供了一种灵活的方法,可以在整个研究过程中积极和包容性地让患者和公众参与.
- 这篇评论探讨了公民科学的潜力,以加强参与和共同开发以社区为中心的研究问题.
研究的目的:
- 探索公民科学的应用,以加强与代表性不足的社区在健康研究中的参与.
- 展示公民科学如何支持与社区需求一致的研究问题共同开发.
- 突出公民科学作为促进健康公平的工具.
主要方法:
- 展示了一个项目案例,该项目与2S/LGBTQQIA+社区共同开发了慢性疼痛研究计划,并使用了公民科学.
- 该项目利用全国性的在线平台,小组研讨会和共识方法,由社区咨询委员会指导.
- 在案例中描述了欧洲公民科学协会十项原则的应用.
主要成果:
- 该案例说明了公民科学在共同开发社区相关研究计划方面的有效性.
- 公民科学平衡大规模的公众参与与协作共创,促进透明度和包容性.
- 优先考虑积极的社区参与,为协作和公平的健康研究制定了新的标准.
结论:
- 公民科学为各种健康研究应用提供了巨大的潜力,可以作为传统优先设定方法的替代方案.
- 它为参与代表性不足的社区提供了一个灵活的框架,从而促进健康公平.
- 这种方法通过集中社区声音来促进更相关和响应性的健康研究成果.
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